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Statistics Στατιστική Από πού λαμβάνουμε τα δεδομένα μας; Ghost Children. Completing the Jigsaw with Covid19 infections and Long Covid in children The prevalence of Long COVID symptoms and COVID-19 complications Table 1 View Source Office for National Statistics The prevalence of Long COVID symptoms and COVID-19 complications Table 1 View Source UK Government Dashboard The prevalence of Long COVID symptoms and COVID-19 complications Table 1 View Source UK Health Security Agency The prevalence of Long COVID symptoms and COVID-19 complications Table 1 View Source

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Συχνές ερωτήσεις Έχουμε συμπεριλάβει μερικές συνήθεις ερωτήσεις που λάβαμε μέσω email από γονείς, σχολεία και φροντιστές Δεν προσποιούμαστε ότι έχουμε όλες τις απαντήσεις, αλλά ελπίζουμε ότι αυτό θα βοηθήσει. Are PIMS-TS and MIS-C the same thing? Yes. In the UK, PIMS-TS stands for Paediatric Inflammatory Multisystem Syndrome, temporally associated with SARS-CoV-2. It is often shortened to PIMS. In the US and internationally it is referred to as Multisystem Inflammatory Syndrome in Children (MIS-C). PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What is PIMS-TS? PIMS-TS is a new systemic inflammatory disease that mainly affects children and young people. The syndrome is caused by a SARS-CoV-2 infection leading to inflammation throughout the body. Inflammation is a normal response from the body’s immune system to fight infection. However, sometimes the immune system can go into overdrive. In PIMS the inflammation is excessive and damaging to the body. For a disease to be classed as rare it affects less than 1 in 2000. Since March 2020 there have been almost 3000 cases of PIMS-TS in the UK alone. PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What are the symptoms of PIMS-TS? All children with PIMS-TS will have a fever >38 degrees C which persists for 24 hours or longer and may not reduce with over-the-counter medications. There is a wide range of other symptoms that children might have, including: Rash Tiredness, sleepiness or fatigue Muscle pain Tummy pain or cramps Red and cracked lips, often swollen Strawberry tongue Swollen fingers, toes or hands and feet, often red Cold hands and feet Peeling skin on hands and feet Headache Red bloodshot eyes Muscle aches and pains Diarrhoea and vomiting Racing heart Dizziness Swollen neck glands Unexplained irritability PIMS-TS is commonly misdiagnosed because: 1. It is a new syndrome 2. It is not commonly seen by doctors 3. Because symptoms are similar to other childhood conditions. 4. Children who experience PIMS-TS may have had an asymptomatic infection 5. Children may not have been previously unwell with COVID-19 6. Children can seem to recover from the acute infection and then develop PIMS-TS 7. The symptoms of PIMS-TS generally don’t appear until 4-6 weeks after SARS-CoV-2 infection. Because PIMS tends to develop after the infectious stage, a PCR test is unlikely to be positive for SARS-CoV-2 at this time. Tell your medical professional if your child has had a positive COVID-19 test or is likely to have been exposed to Covid-19. As with Long Covid, a positive COVID-19 test is not essential for diagnosis. However, knowledge of exposure to Covid-19 supports the diagnosis. We don’t yet know enough about how frequently children who get PIM-TS go on to experience Long Covid. Long Covid Kids have been highlighting in official meetings that non-hospitalised presentations consistent with PIMS have been seen in our support services since 2020. PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What should I do if my child is unwell with the symptoms of PIMS-TS? PIMS-TS is a treatable condition requiring prompt medical treatment. If you think that your child may have PIMS-TS or you are concerned, call your GP or NHS 111 (UK) immediately. If your child develops chest pain, call Emergency Services on 999 (UK) Whilst most children won’t be seriously unwell with SARS-CoV-2 infection, some children may develop PIMS-TS. The most important thing to remember is that any child who is seriously unwell needs to be treated quickly – whatever the illness. There aren't any specific tests for PIMS. Doctors will consider the information available and rule out other more common conditions that cause similar symptoms – including Kawasaki Disease, Sepsis and Toxic Shock Syndrome. Finally, the doctor will be able to work out what treatment is best for your child. If your child is not diagnosed with PIMS and continues to have symptoms consistent with PIMS please get a second opinion. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Are Black or Asian children more likely to be affected? Children from all ethnic minority backgrounds are reported to be affected by PIMS. There have been more children affected by PIMS who are from Black and Asian backgrounds, but it is not yet clear why. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What if my child has not had COVID-19? Children can experience asymptomatic illness with COVID-19. This means a child may have had COVID-19 without showing any symptoms. Seek medical advice if your child has the symptoms of PIMS even if you don't think they have previously had COVID-19. The doctors will rule out other more common conditions that cause similar symptoms – this includes things like Kawasaki Disease, Sepsis and Toxic Shock Syndrome. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians How is PIMS diagnosed and treated? Doctors check how well various organs are working and perform blood tests to look at the levels of inflammation in the body. These results together with symptoms guide the doctors to a diagnosis of PIMS. PIMS can be treated with a combination of medicines to reduce inflammation in the body and temporarily “switch off” the hyperactive immune system • Intravenous immunoglobulin (IVIG). • Corticosteroids • Anti-clotting medicines Aspirin and Dalteparin /Clexane) • Biologic medicines (Anakinra and Tocilizumab) We don’t yet know enough about how frequently children who get PIM-TS go on to experience Long Covid. Long Covid Kids have been highlighting in official meetings that non-hospitalised presentations consistent with PIMS have been seen in their support services since 2020. Treatment must be prescribed by a doctor. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Are children hospitalised with PIMS? For a disease to be classed as rare it affects less than 1 in 2000. Since March 2020 there have been almost 3000 cases of PIMS-TS in the UK alone. Find more information in the Long Covid Kids Child Specific COVID-19 Infection Analysis Blog Updated March 2021 More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Do children die from PIMS? Until December 2021 we were unable to find any public data. In December 2021, 1 child PIMS-TS death was reported. Updated Feb 2022 What follow up care should be offered to a child recovering from PIMS? According to the American Academy of Paediatrics (AAPS) children diagnosed with PIMS should receive; Outpatient paediatric cardiology follow-up starting 1 to 2 weeks after discharge from the hospital. Timing should be determined in consultation with a pediatric cardiologist Children with a myocardial injury must have cardiology directed restriction and/or release for activities. Children who receive steroid therapy or treatment with biologics should receive follow-ups with the paediatric rheumatologist after discharge. Primary care follow-up is recommended for all patients. Children and young people usually recover well from PIMS. Some children and young people may develop Long Covid. Should patients with a history of PIMS receive the COVID-19 vaccine? According to the AAP in the USA children with a history of PIMS / MISC should consider delaying vaccination until after they have recovered from illness (including a return to normal cardiac function) and for at least 90 days following their diagnosis of PIMS /MIS-C. Currently, there are limited data about the safety and efficacy of the COVID-19 vaccine in children with a history of PIMS / MISC. It is recommended that paediatricians and families should participate in shared decision making and consider the risks and benefits of COVID-19 vaccination for each patient. The CDC offers additional guidance. Children who have received monoclonal antibodies or convalescent plasma as part of their treatment should wait at least 90 days before receiving the COVID-19 vaccine. What is Long Covid? Long Covid is the term given to the ongoing signs and symptoms caused by SARS-CoV-2 infection. It is generally used to indicate symptoms and clinical signs that remain unresolved for four weeks or longer. Symptoms of Long Covid can also appear some time after an asymptomatic infection. Long Covid was coined by patients who challenged the early COVID-19 guidelines that stated people recovered from mild cases within two weeks. It is called other terms around the world such as Post-COVID-19, Post Covid Condition, and Post-Acute Sequelae of COVID-19 (PASC). Long Covid was first recognised by patients at the beginning of the pandemic when they noticed that symptoms such as those of pneumonia, chilblain like sores and many others were not resolving with time. This history has been peer-reviewed and published Research conducted by both patients and clinical scientists has since proven that the prolonged signs and symptoms of SARS-CoV-2 infection can include damage and dysfunction to all body systems and organs. Symptoms range from chronic loss of smell and fluctuating rashes to neurological and neuropsychiatric symptoms. Some children living with Long Covid have also eventually received a new diagnosis of conditions such as Paediatric Acute-Onset Neuropsychiatric Syndrome (PANs), narcolepsy and organ damage. A booklet published by the National Institute of Health and Care Excellence (NICE), Scottish Intercollegiate Guidelines Network (SIGN) and Royal college of General Practitioners may help explain more. There is no specific test or biomarker for Long Covid and diagnosis is generally by exclusion of other illnesses and syndromes. Some specific tests like a SPECT scan, however, can reveal covid related damage, such as damage to the small vessels in the lung. Many people living with the disease were previously fit and healthy. Scientists are currently working hard to discover biomarkers for Long Covid and there are a number of promising studies nearing completion. NICE produced a rapid guideline on the management of Long Covid in November 2021. They described Long Covid as the presence of signs and symptoms that develop during or following an infection consistent with COVID-19 which continue for 12-weeks or more and are not explained by an alternative diagnosis. This includes both ongoing symptomatic COVID-19 (from 4 to 12 weeks) and long term consequences of COVID-19 (12-weeks or more). Long Covid Kids is referenced as a resource in this document. See Long Covid Physio for more information. How much do we understand about Long Covid? The National Institute for Health Research (NIHR) Second Themed Review on Long Covid stated there may be grounds to understand Long Covid as up to 4 syndromes with different underlying causes and treatment needs. These could include: Long Term Organ Damage Post Viral Syndrome Post Intensive Care Unit (ICU) Syndrome Potentially an entirely novel syndrome separate from the others that could more specifically and uniquely be identified as "Long Covid". It is important to note that these long-term effects on health may coexist in the same person. A note on Post ICU syndrome: Post ICU syndrome is a well known phenomenon in medicine and points to the long-term impact of the intensive care experience on a patient. Doctors and researchers must distinguish the effects of Post ICU syndrome from the damage caused directly by Covid. They both can persist even after hospital discharge. Most children do not need ICU treatment for Covid and related conditions, but this might happen in some cases, for example, with PIMS/ MIS-C. These syndromes are consistent with the experiences shared in Long Covid Kids Support Services. It's going to take years to understand the full impact of SARS-CoV-2 but there are many studies underway seeking to understand and track Long Covid in the UK and globally. Long Covid Kids are proud to be involved in coproducing research and representing lived experiences. Long Covid Kids and others who are speaking up for children are also working hard to ensure transparency of data. As it stands the prevalence of Long Covid is not counted in UK statistics nor do we know the outcome of the child Covid-19 hospital admissions each month. Long term friend to Long Covid Kids, Dr Elaine Maxwell, has recently called for a National Sentinel Audit of Long Covid to obtain standardised data. We do however, have the benefit of our world renowned Office for National Statistics estimates and hope that this vital reporting service will continue. Who can get Long Covid? Anyone, of any age can get Long Covid regardless of the severity of COVID-19 infection. Asymptomatic infection can lead to Long Covid Mild infection can lead to Long Covid Severe infection can lead to Long Covid Long Covid is more often found in non-hospitalised people. Are some people more 'at risk' of getting Long Covid? We don't yet know which children will develop Long Covid. However, early data indicates that those who fall into the following groups appear to have increased risk factors; Female Being young, fit, and healthy Atopy - eczema, asthma, hay fever. Allergy to animals / cats Previous Post Viral Fatigue Ehlers-Danlos syndromes Fibromyalgia Irritable bowel syndrome We need more research to answer this question. Most people recover well from Sars-CoV-2 infection. Anyone who gets COVID-19 may develop symptoms of Long Covid. When do the symptoms of Long Covid start? New and ongoing symptoms lasting more than 4 weeks after COVID-19 infection could be Long Covid. Long Covid most often occurs at around 4-6 weeks after initial COVID-19 infection but can immediately follow the acute phase of COVID-19 infection, or develop at a later date too. It is not uncommon for children to have a gap between COVID-19 infection and Long Covid. Due to the delay in onset of the symptoms of Long Covid we recommend giving children time to convalesce after COVID-19 infection and be cautious about rushing back to activities, including education. It is well documented by people with lived experience, and from other post-viral conditions, that activity can exacerbate symptoms significantly. It is wise to take a cautious approach. For more guidance on recovery please see our support resources developed by people living with Long Covid for families. Cautious Tortoise - #LessHareMoreTortoise Pacing Penguins - #PacingPenguins Tipis for Teachers - #Tips4Teachers How common is Long Covid in children? The NIHR funded paediatric study into Long Covid is called the Clock Study. Their initial findings published in August 2021 showed that 14% of children can go on to develop Long Covid. This means about 2-4 children in each classroom could statistically develop Long Covid. How much impact can Long Covid have on daily life? Long Covid can significantly impact the daily life of children and young people. At the start of 2021 LCK conducted a study of our members which is published as a pre-print. This bar chart shows the effect of infection on children as reported by their families. Some children have one or two symptoms that can impact their daily life occasionally. Some children are living with chronic and disabling symptoms that significantly impact their daily life a lot. Some children have life-altering symptoms that significantly impact their daily life a lot. This bar chart shows some of the specific ways that families reported their children were affected. Physical Activity "Overall, we found that most children had worse activity levels than before infection, since, at the time of the survey, 21.2% were currently unable to enjoy any activity and 30.2% enjoyed the occasional activity but usually had an increase of symptoms after" Mental Health "Parents reported a wide range of neurocognitive symptoms, including lack of concentration, difficulty processing/remembering information or understanding instruction, short term memory issues and struggles to find the right words" Our study is representative of the experiences of children living with Long Covid and evidences the need for further research into the impact of COVID-19 on children. Does my child need to have a confirmed positve COVID-19 or antibody test to receive a diagnosis of Long Covid? No a doctor can make a clinical diagnosis without evidence of a confirmed COVID-19 test. WHO Clinical Case Definition A negative antibody test should not be used to exclude Long Covid as a diagnosis. Research shows that 36% of people living with Long Covid don't seroconvert and women are 4x more likely to seroconvert. This means people living with Long Covid may not develop antibodies. When can my child receive support for their symptoms? In the UK any child that has symptoms of COVID-19 for more than 4 weeks is eligible for a referral to a NHS Long Covid Hub. To obtain an appointment a GP must refer children to the local paediatric team. If the local team is unable to offer support children can be referred to the nearest Long Covid Hub. You do not have to live in the same area as the hub to receive a referral. Find a hub. ​ How long will it take for my child to get better? We don't know how long it will take for each child to get better from Long Covid. Reports of experiences from families vary. Some studies report that children get better between 3 - 6 months. ​ Many children in our support group have been ill since March 2020 and continue to experience relapsing and remitting symptoms that significantly impact dailly life. This means their symptoms can come and go, and can mild or severe. Some children have been ill since March and report to feel '"85% recovered" if they follow their individualised health regimes, including Pacing. See child specific guidance in Pacing Penguins. ​ It is not uncommon to have a period of apparent recovery and then develop symptoms again 6 months later. Some families report new symptoms over a year after infection. It is useful to remember that recovery isn't linear. This means that the path to recovery isn't a straight line. For most people it is very wiggly. Symptoms can increase and decrease in serverity. This means symptoms may come and go and they may sometimes be better, and sometimes be worse. What are the symptoms of acute COVID-19 infection in a child or teenager? Like adults, children can have an asymptomatic (displaying no symptoms), or symptomatic acute COVID-19 infection. A comprehensive list of COVID-19 symptoms can be found on the CDC website. The NHS updated its symptoms list in April 2022 Long Covid Kids have been calling for an improved COVID-19 symptoms list since, winter 2020, from the NHS and Government websites because the ‘classic’ three symptoms of cough, loss/change of smell/taste, and fever do not appear to pick up early infections in children. A survey of members in our support group showed that children often present with: Rashes Fever Sore Throat Headaches Nausea Emotional Dependency Mood changes Diarrhoea Tummy Pain Cold Like Symptoms Since Omicron children coming through our support services can also report: Pain Bloating Joint Pain We are deeply concerned that free testing has been withdrawn. Accessing ongoing support without a positive test can be more challenging and we advise getting a PCR or LFT test if possible. Please seek medical attention whenever your child is unwell. I think my child or teenager has COVID-19, when should I get a test?" Get a test immediately if you can. The following info was added before free. testing was withdrawn in the UK. We stand by this recommendation but recognise that it may not be possible to get a test. Please BOOK a COVID-19 PCR test immediately if you suspect COVID-19 infection. Any sign of being unwell in a child could potentially be a COVID-19 infection. Please see the FAQ above on symptoms for more information on the typical symptoms children may present with. Children often present with different symptoms to adults, listen to your gut instinct and protect your community. You know your child best. A confirmed positive COVID-19 test will make it easier to access medical support for your child should they go on to develop Long Covid and help to accurately record the number of child COVID-19 cases. For moral, emotional, or practical support please join our support services where you will find a wide range of experiences from families around the world. Does it matter if I don’t get my child tested? In short, Yes. Register any positive result Not only does it make the numbers of child COVID-19 cases appear lower if you don’t test, but parents and carers report it is harder to get ongoing medical support, if needed, without a positive test result. Without a test, you may find it difficult to get the correct diagnosis, and you may get misdiagnosed. The government should use the data to inform their decision-making. My child has passed the isolation stage but still has symptoms, do they still need to isolate?" We are not qualified to advise. When Test and Trace contact you they should advise on the dates for isolation (usually a period of 10 days from symptoms or positive test) and on the circumstances under which your child should remain isolated. If they don’t, do feel free to ask, you can phone 119 if you have any queries. However, many children with Long Covid have had ongoing symptoms for many months (some have been struggling since early 2020) and they are not in isolation and not considered to be infectious. If your child has ongoing symptoms past the initial isolation stage do contact your GP for further advice and guidance. Can my child get COVID-19 again? Can you get COVID-19 more than once? My child has COVID-19, can the rest of the household get reinfected?" Yes, there is growing evidence that anyone can get reinfected with COVID-19, even after vaccination. This is particularly the case as the virus develops new variants. There are multiple reports in our support services of reinfection, with some reports of up to 4 confirmed infections. Some children have antibodies after initial infection, others do not. Further research is required to understand more. Recent research shows that antibodies wane at 6-8 months. Where possible isolate any positive cases away from the rest of the household and particularly those who are clinically vulnerable although we recognise that this is not easy with very young children. Other mitigations you may consider are using masks, improving ventilation in the home by opening windows, hand washing, and wiping down frequent contact surfaces such as light switches, door handles, and the bathroom. Make sure to flush the toilet with the seat down. Updated April 2022 We now have reports that some children who did not develop Long Covid after their 1st COVID-19 infection, have developed Long Covid with a 2nd or 3rd infection. Children who have Long Covid, and are reinfected report a mix of experiences, some experience no change in symptoms, others experience significant relapse. PIMS-TS Please see What is PIMS for more detail. Paediatric inflammatory multisystem syndrome temporally associated with SARS-CoV-2 (PIMS-TS) is also known As Multisystem inflammatory syndrome in children (MIS-C). It is often referred to as PIMS-TS or PIMS for short. PIMS is a new condition triggered by a SARS-CoV-2 infection and isn't common. It can be detected early and treated successfully. All children with PIMS will have a fever, which persists over several days. There is a wide range of other symptoms that children might have too. A few of these include tummy pain, diarrhoea, vomiting, rash, cold hands and feet and red eyes. These symptoms can also be found in other illnesses. The most important thing is to remember that any child who is seriously unwell needs to be treated quickly – whatever the illness. If the child has a temperature of 38⁰ or higher, cold hands and feet and is sleepy, call your GP or 111. If symptoms persist and you have not been able to speak to either a GP or 111, take your child to the nearest A&E. If your child doesn’t have these signs of being seriously unwell but you are still concerned, talk to your GP. My child is experiencing sudden onset of mental ill health symptoms such as Obsessive Compulsive Disorder, Anxiety or Tics or Hallucinations. Is this linked to COVID-19? What is PANS/PANDAS?" Some of these symptoms can be a linked to fever or the post viral condition however this could be a neuropsychiatric condition. PANS and PANDAS are closely associated with infections and viruses. Both the initial onset and subsequent exacerbations are usually incited by a variety of childhood infections. From: PANS PANDAS UK PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) PANS is a neuropsychiatric condition which is triggered by a misdirected immune response which results in an inflammation of a child's brain. ​PANS is a clinical diagnosis and there is no specific test which will prove or disprove the condition. In order for a diagnosis to be made, presentation of the following symptoms must occur: PANS Diagnostic Criteria ​An abrupt, acute, dramatic onset (usually within 24-48 hours) of obsessive compulsive disorder (OCD)* or severely restricted food intake** along with two or more of the following symptoms which are not better explained by a known neurologic or medical disorder. ​Anxiety (heightened anxiety, separation anxiety, irrational fears, panic episodes) Tics Emotional lability and/or Depression Irritability, Aggression, and/or Severely Oppositional Behaviours Behavioural (Developmental) Regression (increase in temper tantrums, loss of age-appropriate language, clingy behaviour not related to anxiety). Sudden Deterioration in School Performance (due to difficulties with memory, concentration, hyperactivity, impulsivity, new deficits of visuospatial skills) Motor or Sensory Abnormalities (dysgraphia, clumsiness, tics, new sensory sensitivities to light, noise, smell, taste or texture). Insomnia and/or Sleep disturbances Enuresis and/or Urinary frequency Whilst not part of the diagnostic criteria, in approximately 25% of cases there have been reports of Psychosis and/or Hallucinations PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) ​PANDAS is a subset of PANS. Similarly, it is a neuropsychiatric condition which is triggered by a misdirected immune response to a Streptococcal infection which results in an inflammation of a child's brain. PANDAS Diagnostic Criteria ​Usually starting with an acute onset of obsessive compulsive disorder and/or tics, particularly multiple, complex or unusual tics. PANDAS symptoms can then appear to wax and wane with the child experiencing flares periodically, following illness or periods of stress. The child is usually between the ages of 3 and puberty when first symptoms occur and usually appear following a streptococcal infection such as Sinusitus, Ear infections or Scarlet Fever. In some cases children can carry the streptococcus bacteria without showing signs of illness. Whilst it is not a diagnostic requirement, in addition to OCD* and/or tics, children may also experience co-morbid symptoms similar to those seen in PANS.​ * OCD may include any of the following: Contamination obsessions and compulsions Obsessions that harm will come to others and/or related compulsions Sexual or religious obsessions Repeating compulsions Symmetry and exactness obsessions Ordering/arranging compulsions Counting compulsions Checking obsessions or compulsions Excessive reassurance seeking Need to touch, tap or rub Intrusive images, words, music or nonsense sounds Ritualised eating behaviours​ ** Severely Restricted food intake may be related to contamination fears, obsessional fears of choking, or other obsessional fears including a new obsession with body image or weight. ​ Make an appointment with your GP to discuss your concerns. Your GP may not be aware of PANS/PANDAS so do direct them to https://www.panspandasuk.org/for-medical-professionals and work together to determine what treatment to implement. Where can I find out more about COVID-19 Vaccines for children and young people? Please see The Royal College of Paediatrics and Child Health for information on vaccines. Information about the vaccine, its safety and side effects has been published by the UK Health Security Agency. Vaccination is not thought to eliminate the risk of Long Covid but early evidence does show that it may reduce risk. How can I reduce risk? Avoiding infection is the only known way to avoid Long Covid. LCK recommend following the advice of the World Health Organisation who have a specific page for young people. Layers of mitigation can help reduce risk of infection. Distancing Mask Wearing Hygiene Ventilation & Fresh Air Vaccinations Isolate when ill Videos Understand more about transmission. Find a mask that fits your face. Schools Support your school to encourage any children with any symptoms to stay home. This simple practice can help schools stay open and offer in person learning. Schools can offer hybrid learning options to maintain access to education for children and young people well enough to continue education at home. What support services do LCK offer? Long Covid Kids offer three online services. Site membership, registration and consent are required. We take safeguarding seriously. LCK Connected Guided Zoom Hang Outs are hosted by our team of volunteers for children and teenagers from 6 - 17 years, and the parents and caregivers who care for them. Participants are required to become a member of our website and compete our registration form before using this service. 6 - 12 Years Teens Parents & Caregivers Discord 13+ Facebook Groups Our moderated Facebook groups offer peer to peer support and signposting for families of children & young people living with Long Covid. A Facebook account & membership consent is required. Who are LCK support services for? Long Covid Kids support services are for families, children and young people living with Long Covid from around the world. Parents and Caregivers LCK Connected ChatBox Facebook Children and Young People ages 6 - 17 LCK Connected 6+ Chat Box 8+ Under 8's We are fundraising to be able to extend our services for under 8's. We are inclusive We believe in mutual respect, dignity, fairness, care and equality. We welcome and support all children, young people, their families and caregivers, from every community, without exception.We recognise the challenges families can face in obtaining a diagnosis and welcome members who have had suspected or confirmed COVID-19 infection living with ongoing symptoms. Register to join How do I register for the support services? How to Register Become a member of the WEBSITE using your name and email address. You can do this HERE. Check your inbox / spam folder for an email. Click the button in the email to complete the registration and consent form. Complete the form in full. Receive your 'Confirmation' email and login to access our support services. Login using the LOGIN button at the top of the website. Once you have logged in you can visit the ChatBox Members Page to view the forum and start chatting. Visit. your website profile to add your photo, edit your notification preference and use our support services any time. LCK take the safeguarding of children and young people seriously and require each person using our services to complete the registration process. This helps us to adhere to our Safeguarding Policy. Troubleshooting Please check you are logged into the website. To check that you are logged check you can see your name / profile showing in the top bar of the website. When you are logged in you can edit your notification preferences. There are other FAQs that you can read that might help too. For ongoing troubleshooting issues please contact supportsevices@longcovidkids.org for support. Are LCK support services free? Yes our services are free. We are a charity and rely on donations. Donations are welcome but not expected. Are there any support services for children under 8 years? We welcome children aged 6 - 7 years in LCK Connected if you feel it is the right space for them. LCK hope to be able to provide additional services for younger children soon. During the trial phase of our support services we identified that younger children need an alternative service to those currently on offer, but that some children age 6-7 years may enjoy LCK Connected. We hope to fundraise to be able to run play therapy sessions for younger children in the future. What safeguarding steps are in place? We take safeguarding seriously. LCK adheres to our safeguarding policy and do our best to screen attendees but parents and caregivers are responsible for the safeguarding of their children and young people under 18 and should remain vigilant. LCK requires a parent or carer present with any child under the age of 16 whilst using our support services. An over view of the steps we take Due diligence in the on boarding of volunteers Website members only Registration & consent of members Manual registration verification by team volunteers Age specific channels Terms Of Use Reminder messages about the rules before posting Ongoing part time moderation Ask our members to report concerns Read our Safeguarding Policy Where can I raise issues or concerns? If you have any ongoing concerns that have not been resolved by a moderator please contact the safeguarding officer. In the first instance; Safeguarding Officer Senior Officer Sarah Priest. spriest@longcovidkids.org Unresolved concerns; Safeguarding Lead LCK CEO Sammie Mcfarland smcfarland@longcovidkids.org Where can I find out more? For general enquires about our support services please email supportservices@longcovidkids.org Read our Safeguarding Policy. Read our Terms and Conditions. I have registered on the website but I keep getting “You don’t have permission to access this page” Once you have registered you will be emailed a form to complete giving further details on how to register. This form needs to be completed before access to the LCK Connected booking area and Chatbox is granted. This email sometimes goes into your spam folder, so check there first. If it isn’t there please email supportservices@longcovidkids.org for assistance. I have completed a form and have only been granted access to one area of the support services website. To allow you the opportunity to post in Chatbox in complete confidence your registration only allows you access to one part of the site. For example if on the registration form you specify the user of the website will be parent and caregiver, you will only be granted access to those areas. To get access for your child they will need to register using a DIFFERENT email specifying the age group they would like access to. Email supportservices@longcovidkids.org for further assistance. I have completed the form and I still cannot access the page Try refreshing your browser and trying again. The page sometimes needs a little patience to load, so do give it a chance. I have registered on the website and have been given access to the wrong area, what can I do? If you have been given access to the incorrect area, please email supportservices@longcovidkids.org with the details of the correct are you would like access to and we will amend it for you. What is Long Covid ? Long Covid is the name for the symptoms that carry on for more than four weeks after someone gets COVID-19. It is a descriptive title given by the people who are living with Long Covid to help explain the difference between initial COVID-19 symptoms and ongoing symptoms. How long does it take to get better from Long Covid? We wish we had the answer to this question, but because Long Covid is so new, we just don’t know yet. We can tell you what we know so far. Many children get better in less than three months Some children take longer to get better. Some children have not recovered yet but have improved. There are also some children who have not seen improvement. So as you can see it is a very tricky question to answer. We have learn't a lot since 2020, and there are lots of ways to reduce symptoms to make them more manageable. Some symptoms can be treated. Your doctor will be able to give you and your family some advice about these. Scientists are working hard to understand Long Covid and to develop treatments which we all hope will make people better. Who gets Long Covid? Both children and grown-ups can experience long-lasting symptoms. Because Long Covid is new, we don’t know why some children experience symptoms that seem to go on and on, and why others don’t. This is one of the things doctors and scientists are working on right now. Who can I talk to? Managing any new situation or change in health can cause worry. It’s okay to cry, feel worried or angry but if these emotions become too difficult to deal with, know that there are people who will want to help you manage these feelings. Share how you feel with a trusted adult. There are lots of people who can offer support. Think about who you can talk to at school or at home. You can talk to one of the health care professionals involved in your care. There are many organisations like ChildLine listed at the bottom of his page. It can also help to talk to people who are a similar age to you who have had a similar experience to you. Lots of children have told our team that they enjoy the free online LCK Connected Zoom HangOut sessions we offer, and they like chatting with the friends they make in ChatBox our online forum. You are not alone. There are people who want to help, including us. “What is the bravest thing you’ve ever said” asked the boy, “Help” said the horse.” Charlie Mackesy Kooth Available as an app or on a desktop, Kooth is for CPY age 10-25 and is free, safe, anonymous support accredited by BACP. The Mix 0808 808 4494 (3pm-12am daily) Various avenues of support such as live chat, discussion boards and helpline for CYP age 10-25. Young Minds Textline. Text YM to 85258 (free from EE, O2, Vodafone, 3, Virgin Mobile, BT Mobile, GiffGaff, Tesco Mobile and Telecom Plus). Provides free, 24/7 text support for young people across the UK experiencing a mental health crisis. All texts are answered by trained volunteers, with support from experienced clinical supervisors. Young Minds Website This is a great website that a child or young person can access with excellent resources. Parents can also access it for ways to help support their children. The Emotional Wellbeing and Mental Health Service (EWMHS) Provides advice and support to children, young people and families who are in need of support with their emotional wellbeing or mental health difficulties. Can I talk to other kids with Long Covid? Yes. Lots of children have told our team that they enjoy the free online Zoom HangOut sessions we offer, and they like chatting with the friends they make in ChatBox. ChatBox is an online space for kids living with Long Covid. Kids between the ages of 8-17 years can chat online, be kids, and support each other. There is a different space for each age group to connect with other kids who are in the same age group and who maybe going through a similar experience. It is a great way to make new friends who ‘get it’. If you are under 16 you will need to ask your parent or caregiver to complete the registration form, if you are over 16 you can complete this for yourself. ChatBox Online Forum Online chat forum for kids living with Long Covid. Separate channels for ages; • Age 8-11 years • Age 12-14 years • Age 15+ years • Parents & caregivers ChatBox members can choose to engage in specific topics and discussions that interest them. Connect with other kids who are the same age, or share similar interests and form supportive friendships. ChatBox can be used in between LCK Connected sessions to nurture relationships and gain support. Find out more LCK Connected LCK Connected offers weekly Zoom HangOuts led by our experienced volunteer team and provides a welcoming session for children from ages 6-17 years, parents and caregivers. Members can actively participate and chat with cameras on, others pop in to say ‘Hello’ at the start and then switch their camera off, hang out, chill and listen. Members often choose to continue discussions, friendships and peer-to-peer support via ChatBox Find out more What if nobody believes me ? Long Covid is new, and everybody is learning. Try to talk to your family or trusted adult about how you are feeling. Try to explain how your symptoms affect you. You may find it helpful to show them the information on this website to help them understand more about Long Covid. Consider reaching out to a trusted adult from your extended family (e.g Aunt, Grandparent) or somebody at school. They might be able to help speak to your family for you or with you. Depending on your age you have different rights to seek support without consent and whether or not this support has to be kept private or confidential. You could phone your GP to seek support and they will assess whether you have the capacity to do this. Can I consent to my own treatment? People aged 16 or over are entitled to consent to their own treatment. This can only be overruled in exceptional circumstances. If you are under the age of 16 you can consent to your own treatment if you’re believed to have enough intelligence, and competence to fully understand what’s involved in your treatment. This is known as being Gillick competent. Can I refuse to have treatment? If you refuse treatment, and that refusal could cause you serious harm, your decision can be overruled by the Court of Protection. This is the legal body that oversees the operation of the Mental Capacity Act (2005). If you have refused treatment your parents may consent for you, but it’s usually thought best to go through the courts in this situation. Do I have a right to keep my treatment confidential? Yes. Article 16 of the UN Convention states that children have a right to privacy. This means that you are entitled to respect for privacy and confidentiality, for example, in getting advice and counselling on health matters, depending on your age and understanding. Breaking confidentiality is done only when it is in the best interest of you or the public, required by law or if you give your consent.

ΥΠΟΣΤΗΡΙΞΗ Join LCK Discord ΠΟΙΟΣ ΜΠΟΡΕΙ ΕΓΓΡΑΦΕΙΤΕ ΜΑΣ ΟΜΑΔΑ? Γονείς και φροντιστές που; Αποκτήστε ένα παιδί που είχε COVID-19. Θέλετε να συνδεθείτε με άλλες οικογένειες που περνούν το ίδιο πράγμα. Είναι παθιασμένοι με την ευαισθητοποίηση. Θα ήθελα να μοιραστώ την ιστορία τους. Είναι δύσκολο να βρεις βοήθεια. Θα ήθελα να υποστηρίξω την έρευνα για το Long Covid σε παιδιά. FAQS - chatbox Testimonials "LCK connected is a online chat forum for parents, caregivers, children and young people living with Long Covid. "

ΥΠΟΣΤΗΡΙΞΗ ΠΟΙΟΣ ΜΠΟΡΕΙ ΕΓΓΡΑΦΕΙΤΕ ΜΑΣ ΟΜΑΔΑ? Γονείς και φροντιστές που; Αποκτήστε ένα παιδί που είχε COVID-19. Θέλετε να συνδεθείτε με άλλες οικογένειες που περνούν το ίδιο πράγμα. Είναι παθιασμένοι με την ευαισθητοποίηση. Θα ήθελα να μοιραστώ την ιστορία τους. Είναι δύσκολο να βρεις βοήθεια. Θα ήθελα να υποστηρίξω την έρευνα για το Long Covid σε παιδιά. Book An Online Sesson Are PIMS-TS and MIS-C the same thing? Yes. In the UK, PIMS-TS stands for Paediatric Inflammatory Multisystem Syndrome, temporally associated with SARS-CoV-2. It is often shortened to PIMS. In the US and internationally it is referred to as Multisystem Inflammatory Syndrome in Children (MIS-C). PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What is PIMS-TS? PIMS-TS is a new systemic inflammatory disease that mainly affects children and young people. The syndrome is caused by a SARS-CoV-2 infection leading to inflammation throughout the body. Inflammation is a normal response from the body’s immune system to fight infection. However, sometimes the immune system can go into overdrive. In PIMS the inflammation is excessive and damaging to the body. For a disease to be classed as rare it affects less than 1 in 2000. Since March 2020 there have been almost 3000 cases of PIMS-TS in the UK alone. PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What are the symptoms of PIMS-TS? All children with PIMS-TS will have a fever >38 degrees C which persists for 24 hours or longer and may not reduce with over-the-counter medications. There is a wide range of other symptoms that children might have, including: Rash Tiredness, sleepiness or fatigue Muscle pain Tummy pain or cramps Red and cracked lips, often swollen Strawberry tongue Swollen fingers, toes or hands and feet, often red Cold hands and feet Peeling skin on hands and feet Headache Red bloodshot eyes Muscle aches and pains Diarrhoea and vomiting Racing heart Dizziness Swollen neck glands Unexplained irritability PIMS-TS is commonly misdiagnosed because: 1. It is a new syndrome 2. It is not commonly seen by doctors 3. Because symptoms are similar to other childhood conditions. 4. Children who experience PIMS-TS may have had an asymptomatic infection 5. Children may not have been previously unwell with COVID-19 6. Children can seem to recover from the acute infection and then develop PIMS-TS 7. The symptoms of PIMS-TS generally don’t appear until 4-6 weeks after SARS-CoV-2 infection. Because PIMS tends to develop after the infectious stage, a PCR test is unlikely to be positive for SARS-CoV-2 at this time. Tell your medical professional if your child has had a positive COVID-19 test or is likely to have been exposed to Covid-19. As with Long Covid, a positive COVID-19 test is not essential for diagnosis. However, knowledge of exposure to Covid-19 supports the diagnosis. We don’t yet know enough about how frequently children who get PIM-TS go on to experience Long Covid. Long Covid Kids have been highlighting in official meetings that non-hospitalised presentations consistent with PIMS have been seen in our support services since 2020. PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What should I do if my child is unwell with the symptoms of PIMS-TS? PIMS-TS is a treatable condition requiring prompt medical treatment. If you think that your child may have PIMS-TS or you are concerned, call your GP or NHS 111 (UK) immediately. If your child develops chest pain, call Emergency Services on 999 (UK) Whilst most children won’t be seriously unwell with SARS-CoV-2 infection, some children may develop PIMS-TS. The most important thing to remember is that any child who is seriously unwell needs to be treated quickly – whatever the illness. There aren't any specific tests for PIMS. Doctors will consider the information available and rule out other more common conditions that cause similar symptoms – including Kawasaki Disease, Sepsis and Toxic Shock Syndrome. Finally, the doctor will be able to work out what treatment is best for your child. If your child is not diagnosed with PIMS and continues to have symptoms consistent with PIMS please get a second opinion. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Are Black or Asian children more likely to be affected? Children from all ethnic minority backgrounds are reported to be affected by PIMS. There have been more children affected by PIMS who are from Black and Asian backgrounds, but it is not yet clear why. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What if my child has not had COVID-19? Children can experience asymptomatic illness with COVID-19. This means a child may have had COVID-19 without showing any symptoms. Seek medical advice if your child has the symptoms of PIMS even if you don't think they have previously had COVID-19. The doctors will rule out other more common conditions that cause similar symptoms – this includes things like Kawasaki Disease, Sepsis and Toxic Shock Syndrome. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians How is PIMS diagnosed and treated? Doctors check how well various organs are working and perform blood tests to look at the levels of inflammation in the body. These results together with symptoms guide the doctors to a diagnosis of PIMS. PIMS can be treated with a combination of medicines to reduce inflammation in the body and temporarily “switch off” the hyperactive immune system • Intravenous immunoglobulin (IVIG). • Corticosteroids • Anti-clotting medicines Aspirin and Dalteparin /Clexane) • Biologic medicines (Anakinra and Tocilizumab) We don’t yet know enough about how frequently children who get PIM-TS go on to experience Long Covid. Long Covid Kids have been highlighting in official meetings that non-hospitalised presentations consistent with PIMS have been seen in their support services since 2020. Treatment must be prescribed by a doctor. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Are children hospitalised with PIMS? For a disease to be classed as rare it affects less than 1 in 2000. Since March 2020 there have been almost 3000 cases of PIMS-TS in the UK alone. Find more information in the Long Covid Kids Child Specific COVID-19 Infection Analysis Blog Updated March 2021 More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Do children die from PIMS? Until December 2021 we were unable to find any public data. In December 2021, 1 child PIMS-TS death was reported. Updated Feb 2022 What follow up care should be offered to a child recovering from PIMS? According to the American Academy of Paediatrics (AAPS) children diagnosed with PIMS should receive; Outpatient paediatric cardiology follow-up starting 1 to 2 weeks after discharge from the hospital. Timing should be determined in consultation with a pediatric cardiologist Children with a myocardial injury must have cardiology directed restriction and/or release for activities. Children who receive steroid therapy or treatment with biologics should receive follow-ups with the paediatric rheumatologist after discharge. Primary care follow-up is recommended for all patients. Children and young people usually recover well from PIMS. Some children and young people may develop Long Covid. Should patients with a history of PIMS receive the COVID-19 vaccine? According to the AAP in the USA children with a history of PIMS / MISC should consider delaying vaccination until after they have recovered from illness (including a return to normal cardiac function) and for at least 90 days following their diagnosis of PIMS /MIS-C. Currently, there are limited data about the safety and efficacy of the COVID-19 vaccine in children with a history of PIMS / MISC. It is recommended that paediatricians and families should participate in shared decision making and consider the risks and benefits of COVID-19 vaccination for each patient. The CDC offers additional guidance. Children who have received monoclonal antibodies or convalescent plasma as part of their treatment should wait at least 90 days before receiving the COVID-19 vaccine. What is Long Covid? Long Covid is the term given to the ongoing signs and symptoms caused by SARS-CoV-2 infection. It is generally used to indicate symptoms and clinical signs that remain unresolved for four weeks or longer. Symptoms of Long Covid can also appear some time after an asymptomatic infection. Long Covid was coined by patients who challenged the early COVID-19 guidelines that stated people recovered from mild cases within two weeks. It is called other terms around the world such as Post-COVID-19, Post Covid Condition, and Post-Acute Sequelae of COVID-19 (PASC). Long Covid was first recognised by patients at the beginning of the pandemic when they noticed that symptoms such as those of pneumonia, chilblain like sores and many others were not resolving with time. This history has been peer-reviewed and published Research conducted by both patients and clinical scientists has since proven that the prolonged signs and symptoms of SARS-CoV-2 infection can include damage and dysfunction to all body systems and organs. Symptoms range from chronic loss of smell and fluctuating rashes to neurological and neuropsychiatric symptoms. Some children living with Long Covid have also eventually received a new diagnosis of conditions such as Paediatric Acute-Onset Neuropsychiatric Syndrome (PANs), narcolepsy and organ damage. A booklet published by the National Institute of Health and Care Excellence (NICE), Scottish Intercollegiate Guidelines Network (SIGN) and Royal college of General Practitioners may help explain more. There is no specific test or biomarker for Long Covid and diagnosis is generally by exclusion of other illnesses and syndromes. Some specific tests like a SPECT scan, however, can reveal covid related damage, such as damage to the small vessels in the lung. Many people living with the disease were previously fit and healthy. Scientists are currently working hard to discover biomarkers for Long Covid and there are a number of promising studies nearing completion. NICE produced a rapid guideline on the management of Long Covid in November 2021. They described Long Covid as the presence of signs and symptoms that develop during or following an infection consistent with COVID-19 which continue for 12-weeks or more and are not explained by an alternative diagnosis. This includes both ongoing symptomatic COVID-19 (from 4 to 12 weeks) and long term consequences of COVID-19 (12-weeks or more). Long Covid Kids is referenced as a resource in this document. See Long Covid Physio for more information. How much do we understand about Long Covid? The National Institute for Health Research (NIHR) Second Themed Review on Long Covid stated there may be grounds to understand Long Covid as up to 4 syndromes with different underlying causes and treatment needs. These could include: Long Term Organ Damage Post Viral Syndrome Post Intensive Care Unit (ICU) Syndrome Potentially an entirely novel syndrome separate from the others that could more specifically and uniquely be identified as "Long Covid". It is important to note that these long-term effects on health may coexist in the same person. A note on Post ICU syndrome: Post ICU syndrome is a well known phenomenon in medicine and points to the long-term impact of the intensive care experience on a patient. Doctors and researchers must distinguish the effects of Post ICU syndrome from the damage caused directly by Covid. They both can persist even after hospital discharge. Most children do not need ICU treatment for Covid and related conditions, but this might happen in some cases, for example, with PIMS/ MIS-C. These syndromes are consistent with the experiences shared in Long Covid Kids Support Services. It's going to take years to understand the full impact of SARS-CoV-2 but there are many studies underway seeking to understand and track Long Covid in the UK and globally. Long Covid Kids are proud to be involved in coproducing research and representing lived experiences. Long Covid Kids and others who are speaking up for children are also working hard to ensure transparency of data. As it stands the prevalence of Long Covid is not counted in UK statistics nor do we know the outcome of the child Covid-19 hospital admissions each month. Long term friend to Long Covid Kids, Dr Elaine Maxwell, has recently called for a National Sentinel Audit of Long Covid to obtain standardised data. We do however, have the benefit of our world renowned Office for National Statistics estimates and hope that this vital reporting service will continue. Who can get Long Covid? Anyone, of any age can get Long Covid regardless of the severity of COVID-19 infection. Asymptomatic infection can lead to Long Covid Mild infection can lead to Long Covid Severe infection can lead to Long Covid Long Covid is more often found in non-hospitalised people. Are some people more 'at risk' of getting Long Covid? We don't yet know which children will develop Long Covid. However, early data indicates that those who fall into the following groups appear to have increased risk factors; Female Being young, fit, and healthy Atopy - eczema, asthma, hay fever. Allergy to animals / cats Previous Post Viral Fatigue Ehlers-Danlos syndromes Fibromyalgia Irritable bowel syndrome We need more research to answer this question. Most people recover well from Sars-CoV-2 infection. Anyone who gets COVID-19 may develop symptoms of Long Covid. When do the symptoms of Long Covid start? New and ongoing symptoms lasting more than 4 weeks after COVID-19 infection could be Long Covid. Long Covid most often occurs at around 4-6 weeks after initial COVID-19 infection but can immediately follow the acute phase of COVID-19 infection, or develop at a later date too. It is not uncommon for children to have a gap between COVID-19 infection and Long Covid. Due to the delay in onset of the symptoms of Long Covid we recommend giving children time to convalesce after COVID-19 infection and be cautious about rushing back to activities, including education. It is well documented by people with lived experience, and from other post-viral conditions, that activity can exacerbate symptoms significantly. It is wise to take a cautious approach. For more guidance on recovery please see our support resources developed by people living with Long Covid for families. Cautious Tortoise - #LessHareMoreTortoise Pacing Penguins - #PacingPenguins Tipis for Teachers - #Tips4Teachers How common is Long Covid in children? The NIHR funded paediatric study into Long Covid is called the Clock Study. Their initial findings published in August 2021 showed that 14% of children can go on to develop Long Covid. This means about 2-4 children in each classroom could statistically develop Long Covid. How much impact can Long Covid have on daily life? Long Covid can significantly impact the daily life of children and young people. At the start of 2021 LCK conducted a study of our members which is published as a pre-print. This bar chart shows the effect of infection on children as reported by their families. Some children have one or two symptoms that can impact their daily life occasionally. Some children are living with chronic and disabling symptoms that significantly impact their daily life a lot. Some children have life-altering symptoms that significantly impact their daily life a lot. This bar chart shows some of the specific ways that families reported their children were affected. Physical Activity "Overall, we found that most children had worse activity levels than before infection, since, at the time of the survey, 21.2% were currently unable to enjoy any activity and 30.2% enjoyed the occasional activity but usually had an increase of symptoms after" Mental Health "Parents reported a wide range of neurocognitive symptoms, including lack of concentration, difficulty processing/remembering information or understanding instruction, short term memory issues and struggles to find the right words" Our study is representative of the experiences of children living with Long Covid and evidences the need for further research into the impact of COVID-19 on children. Does my child need to have a confirmed positve COVID-19 or antibody test to receive a diagnosis of Long Covid? No a doctor can make a clinical diagnosis without evidence of a confirmed COVID-19 test. WHO Clinical Case Definition A negative antibody test should not be used to exclude Long Covid as a diagnosis. Research shows that 36% of people living with Long Covid don't seroconvert and women are 4x more likely to seroconvert. This means people living with Long Covid may not develop antibodies. When can my child receive support for their symptoms? In the UK any child that has symptoms of COVID-19 for more than 4 weeks is eligible for a referral to a NHS Long Covid Hub. To obtain an appointment a GP must refer children to the local paediatric team. If the local team is unable to offer support children can be referred to the nearest Long Covid Hub. You do not have to live in the same area as the hub to receive a referral. Find a hub. ​ How long will it take for my child to get better? We don't know how long it will take for each child to get better from Long Covid. Reports of experiences from families vary. Some studies report that children get better between 3 - 6 months. ​ Many children in our support group have been ill since March 2020 and continue to experience relapsing and remitting symptoms that significantly impact dailly life. This means their symptoms can come and go, and can mild or severe. Some children have been ill since March and report to feel '"85% recovered" if they follow their individualised health regimes, including Pacing. See child specific guidance in Pacing Penguins. ​ It is not uncommon to have a period of apparent recovery and then develop symptoms again 6 months later. Some families report new symptoms over a year after infection. It is useful to remember that recovery isn't linear. This means that the path to recovery isn't a straight line. For most people it is very wiggly. Symptoms can increase and decrease in serverity. This means symptoms may come and go and they may sometimes be better, and sometimes be worse. What are the symptoms of acute COVID-19 infection in a child or teenager? Like adults, children can have an asymptomatic (displaying no symptoms), or symptomatic acute COVID-19 infection. A comprehensive list of COVID-19 symptoms can be found on the CDC website. The NHS updated its symptoms list in April 2022 Long Covid Kids have been calling for an improved COVID-19 symptoms list since, winter 2020, from the NHS and Government websites because the ‘classic’ three symptoms of cough, loss/change of smell/taste, and fever do not appear to pick up early infections in children. A survey of members in our support group showed that children often present with: Rashes Fever Sore Throat Headaches Nausea Emotional Dependency Mood changes Diarrhoea Tummy Pain Cold Like Symptoms Since Omicron children coming through our support services can also report: Pain Bloating Joint Pain We are deeply concerned that free testing has been withdrawn. Accessing ongoing support without a positive test can be more challenging and we advise getting a PCR or LFT test if possible. Please seek medical attention whenever your child is unwell. I think my child or teenager has COVID-19, when should I get a test?" Get a test immediately if you can. The following info was added before free. testing was withdrawn in the UK. We stand by this recommendation but recognise that it may not be possible to get a test. Please BOOK a COVID-19 PCR test immediately if you suspect COVID-19 infection. Any sign of being unwell in a child could potentially be a COVID-19 infection. Please see the FAQ above on symptoms for more information on the typical symptoms children may present with. Children often present with different symptoms to adults, listen to your gut instinct and protect your community. You know your child best. A confirmed positive COVID-19 test will make it easier to access medical support for your child should they go on to develop Long Covid and help to accurately record the number of child COVID-19 cases. For moral, emotional, or practical support please join our support services where you will find a wide range of experiences from families around the world. Does it matter if I don’t get my child tested? In short, Yes. Register any positive result Not only does it make the numbers of child COVID-19 cases appear lower if you don’t test, but parents and carers report it is harder to get ongoing medical support, if needed, without a positive test result. Without a test, you may find it difficult to get the correct diagnosis, and you may get misdiagnosed. The government should use the data to inform their decision-making. My child has passed the isolation stage but still has symptoms, do they still need to isolate?" We are not qualified to advise. When Test and Trace contact you they should advise on the dates for isolation (usually a period of 10 days from symptoms or positive test) and on the circumstances under which your child should remain isolated. If they don’t, do feel free to ask, you can phone 119 if you have any queries. However, many children with Long Covid have had ongoing symptoms for many months (some have been struggling since early 2020) and they are not in isolation and not considered to be infectious. If your child has ongoing symptoms past the initial isolation stage do contact your GP for further advice and guidance. Can my child get COVID-19 again? Can you get COVID-19 more than once? My child has COVID-19, can the rest of the household get reinfected?" Yes, there is growing evidence that anyone can get reinfected with COVID-19, even after vaccination. This is particularly the case as the virus develops new variants. There are multiple reports in our support services of reinfection, with some reports of up to 4 confirmed infections. Some children have antibodies after initial infection, others do not. Further research is required to understand more. Recent research shows that antibodies wane at 6-8 months. Where possible isolate any positive cases away from the rest of the household and particularly those who are clinically vulnerable although we recognise that this is not easy with very young children. Other mitigations you may consider are using masks, improving ventilation in the home by opening windows, hand washing, and wiping down frequent contact surfaces such as light switches, door handles, and the bathroom. Make sure to flush the toilet with the seat down. Updated April 2022 We now have reports that some children who did not develop Long Covid after their 1st COVID-19 infection, have developed Long Covid with a 2nd or 3rd infection. Children who have Long Covid, and are reinfected report a mix of experiences, some experience no change in symptoms, others experience significant relapse. PIMS-TS Please see What is PIMS for more detail. Paediatric inflammatory multisystem syndrome temporally associated with SARS-CoV-2 (PIMS-TS) is also known As Multisystem inflammatory syndrome in children (MIS-C). It is often referred to as PIMS-TS or PIMS for short. PIMS is a new condition triggered by a SARS-CoV-2 infection and isn't common. It can be detected early and treated successfully. All children with PIMS will have a fever, which persists over several days. There is a wide range of other symptoms that children might have too. A few of these include tummy pain, diarrhoea, vomiting, rash, cold hands and feet and red eyes. These symptoms can also be found in other illnesses. The most important thing is to remember that any child who is seriously unwell needs to be treated quickly – whatever the illness. If the child has a temperature of 38⁰ or higher, cold hands and feet and is sleepy, call your GP or 111. If symptoms persist and you have not been able to speak to either a GP or 111, take your child to the nearest A&E. If your child doesn’t have these signs of being seriously unwell but you are still concerned, talk to your GP. My child is experiencing sudden onset of mental ill health symptoms such as Obsessive Compulsive Disorder, Anxiety or Tics or Hallucinations. Is this linked to COVID-19? What is PANS/PANDAS?" Some of these symptoms can be a linked to fever or the post viral condition however this could be a neuropsychiatric condition. PANS and PANDAS are closely associated with infections and viruses. Both the initial onset and subsequent exacerbations are usually incited by a variety of childhood infections. From: PANS PANDAS UK PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) PANS is a neuropsychiatric condition which is triggered by a misdirected immune response which results in an inflammation of a child's brain. ​PANS is a clinical diagnosis and there is no specific test which will prove or disprove the condition. In order for a diagnosis to be made, presentation of the following symptoms must occur: PANS Diagnostic Criteria ​An abrupt, acute, dramatic onset (usually within 24-48 hours) of obsessive compulsive disorder (OCD)* or severely restricted food intake** along with two or more of the following symptoms which are not better explained by a known neurologic or medical disorder. ​Anxiety (heightened anxiety, separation anxiety, irrational fears, panic episodes) Tics Emotional lability and/or Depression Irritability, Aggression, and/or Severely Oppositional Behaviours Behavioural (Developmental) Regression (increase in temper tantrums, loss of age-appropriate language, clingy behaviour not related to anxiety). Sudden Deterioration in School Performance (due to difficulties with memory, concentration, hyperactivity, impulsivity, new deficits of visuospatial skills) Motor or Sensory Abnormalities (dysgraphia, clumsiness, tics, new sensory sensitivities to light, noise, smell, taste or texture). Insomnia and/or Sleep disturbances Enuresis and/or Urinary frequency Whilst not part of the diagnostic criteria, in approximately 25% of cases there have been reports of Psychosis and/or Hallucinations PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) ​PANDAS is a subset of PANS. Similarly, it is a neuropsychiatric condition which is triggered by a misdirected immune response to a Streptococcal infection which results in an inflammation of a child's brain. PANDAS Diagnostic Criteria ​Usually starting with an acute onset of obsessive compulsive disorder and/or tics, particularly multiple, complex or unusual tics. PANDAS symptoms can then appear to wax and wane with the child experiencing flares periodically, following illness or periods of stress. The child is usually between the ages of 3 and puberty when first symptoms occur and usually appear following a streptococcal infection such as Sinusitus, Ear infections or Scarlet Fever. In some cases children can carry the streptococcus bacteria without showing signs of illness. Whilst it is not a diagnostic requirement, in addition to OCD* and/or tics, children may also experience co-morbid symptoms similar to those seen in PANS.​ * OCD may include any of the following: Contamination obsessions and compulsions Obsessions that harm will come to others and/or related compulsions Sexual or religious obsessions Repeating compulsions Symmetry and exactness obsessions Ordering/arranging compulsions Counting compulsions Checking obsessions or compulsions Excessive reassurance seeking Need to touch, tap or rub Intrusive images, words, music or nonsense sounds Ritualised eating behaviours​ ** Severely Restricted food intake may be related to contamination fears, obsessional fears of choking, or other obsessional fears including a new obsession with body image or weight. ​ Make an appointment with your GP to discuss your concerns. Your GP may not be aware of PANS/PANDAS so do direct them to https://www.panspandasuk.org/for-medical-professionals and work together to determine what treatment to implement. Where can I find out more about COVID-19 Vaccines for children and young people? Please see The Royal College of Paediatrics and Child Health for information on vaccines. Information about the vaccine, its safety and side effects has been published by the UK Health Security Agency. Vaccination is not thought to eliminate the risk of Long Covid but early evidence does show that it may reduce risk. How can I reduce risk? Avoiding infection is the only known way to avoid Long Covid. LCK recommend following the advice of the World Health Organisation who have a specific page for young people. Layers of mitigation can help reduce risk of infection. Distancing Mask Wearing Hygiene Ventilation & Fresh Air Vaccinations Isolate when ill Videos Understand more about transmission. Find a mask that fits your face. Schools Support your school to encourage any children with any symptoms to stay home. This simple practice can help schools stay open and offer in person learning. Schools can offer hybrid learning options to maintain access to education for children and young people well enough to continue education at home. What support services do LCK offer? Long Covid Kids offer three online services. Site membership, registration and consent are required. We take safeguarding seriously. LCK Connected Guided Zoom Hang Outs are hosted by our team of volunteers for children and teenagers from 6 - 17 years, and the parents and caregivers who care for them. Participants are required to become a member of our website and compete our registration form before using this service. 6 - 12 Years Teens Parents & Caregivers Discord 13+ Facebook Groups Our moderated Facebook groups offer peer to peer support and signposting for families of children & young people living with Long Covid. A Facebook account & membership consent is required. Who are LCK support services for? Long Covid Kids support services are for families, children and young people living with Long Covid from around the world. Parents and Caregivers LCK Connected ChatBox Facebook Children and Young People ages 6 - 17 LCK Connected 6+ Chat Box 8+ Under 8's We are fundraising to be able to extend our services for under 8's. We are inclusive We believe in mutual respect, dignity, fairness, care and equality. We welcome and support all children, young people, their families and caregivers, from every community, without exception.We recognise the challenges families can face in obtaining a diagnosis and welcome members who have had suspected or confirmed COVID-19 infection living with ongoing symptoms. Register to join How do I register for the support services? How to Register Become a member of the WEBSITE using your name and email address. You can do this HERE. Check your inbox / spam folder for an email. Click the button in the email to complete the registration and consent form. Complete the form in full. Receive your 'Confirmation' email and login to access our support services. Login using the LOGIN button at the top of the website. Once you have logged in you can visit the ChatBox Members Page to view the forum and start chatting. Visit. your website profile to add your photo, edit your notification preference and use our support services any time. LCK take the safeguarding of children and young people seriously and require each person using our services to complete the registration process. This helps us to adhere to our Safeguarding Policy. Troubleshooting Please check you are logged into the website. To check that you are logged check you can see your name / profile showing in the top bar of the website. When you are logged in you can edit your notification preferences. There are other FAQs that you can read that might help too. For ongoing troubleshooting issues please contact supportsevices@longcovidkids.org for support. Are LCK support services free? Yes our services are free. We are a charity and rely on donations. Donations are welcome but not expected. Are there any support services for children under 8 years? We welcome children aged 6 - 7 years in LCK Connected if you feel it is the right space for them. LCK hope to be able to provide additional services for younger children soon. During the trial phase of our support services we identified that younger children need an alternative service to those currently on offer, but that some children age 6-7 years may enjoy LCK Connected. We hope to fundraise to be able to run play therapy sessions for younger children in the future. What safeguarding steps are in place? We take safeguarding seriously. LCK adheres to our safeguarding policy and do our best to screen attendees but parents and caregivers are responsible for the safeguarding of their children and young people under 18 and should remain vigilant. LCK requires a parent or carer present with any child under the age of 16 whilst using our support services. An over view of the steps we take Due diligence in the on boarding of volunteers Website members only Registration & consent of members Manual registration verification by team volunteers Age specific channels Terms Of Use Reminder messages about the rules before posting Ongoing part time moderation Ask our members to report concerns Read our Safeguarding Policy Where can I raise issues or concerns? If you have any ongoing concerns that have not been resolved by a moderator please contact the safeguarding officer. In the first instance; Safeguarding Officer Senior Officer Sarah Priest. spriest@longcovidkids.org Unresolved concerns; Safeguarding Lead LCK CEO Sammie Mcfarland smcfarland@longcovidkids.org Where can I find out more? For general enquires about our support services please email supportservices@longcovidkids.org Read our Safeguarding Policy. Read our Terms and Conditions. I have registered on the website but I keep getting “You don’t have permission to access this page” Once you have registered you will be emailed a form to complete giving further details on how to register. This form needs to be completed before access to the LCK Connected booking area and Chatbox is granted. This email sometimes goes into your spam folder, so check there first. If it isn’t there please email supportservices@longcovidkids.org for assistance. I have completed a form and have only been granted access to one area of the support services website. To allow you the opportunity to post in Chatbox in complete confidence your registration only allows you access to one part of the site. For example if on the registration form you specify the user of the website will be parent and caregiver, you will only be granted access to those areas. To get access for your child they will need to register using a DIFFERENT email specifying the age group they would like access to. Email supportservices@longcovidkids.org for further assistance. I have completed the form and I still cannot access the page Try refreshing your browser and trying again. The page sometimes needs a little patience to load, so do give it a chance. I have registered on the website and have been given access to the wrong area, what can I do? If you have been given access to the incorrect area, please email supportservices@longcovidkids.org with the details of the correct are you would like access to and we will amend it for you. What is Long Covid ? Long Covid is the name for the symptoms that carry on for more than four weeks after someone gets COVID-19. It is a descriptive title given by the people who are living with Long Covid to help explain the difference between initial COVID-19 symptoms and ongoing symptoms. How long does it take to get better from Long Covid? We wish we had the answer to this question, but because Long Covid is so new, we just don’t know yet. We can tell you what we know so far. Many children get better in less than three months Some children take longer to get better. Some children have not recovered yet but have improved. There are also some children who have not seen improvement. So as you can see it is a very tricky question to answer. We have learn't a lot since 2020, and there are lots of ways to reduce symptoms to make them more manageable. Some symptoms can be treated. Your doctor will be able to give you and your family some advice about these. Scientists are working hard to understand Long Covid and to develop treatments which we all hope will make people better. Who gets Long Covid? Both children and grown-ups can experience long-lasting symptoms. Because Long Covid is new, we don’t know why some children experience symptoms that seem to go on and on, and why others don’t. This is one of the things doctors and scientists are working on right now. Who can I talk to? Managing any new situation or change in health can cause worry. It’s okay to cry, feel worried or angry but if these emotions become too difficult to deal with, know that there are people who will want to help you manage these feelings. Share how you feel with a trusted adult. There are lots of people who can offer support. Think about who you can talk to at school or at home. You can talk to one of the health care professionals involved in your care. There are many organisations like ChildLine listed at the bottom of his page. It can also help to talk to people who are a similar age to you who have had a similar experience to you. Lots of children have told our team that they enjoy the free online LCK Connected Zoom HangOut sessions we offer, and they like chatting with the friends they make in ChatBox our online forum. You are not alone. There are people who want to help, including us. “What is the bravest thing you’ve ever said” asked the boy, “Help” said the horse.” Charlie Mackesy Kooth Available as an app or on a desktop, Kooth is for CPY age 10-25 and is free, safe, anonymous support accredited by BACP. The Mix 0808 808 4494 (3pm-12am daily) Various avenues of support such as live chat, discussion boards and helpline for CYP age 10-25. Young Minds Textline. Text YM to 85258 (free from EE, O2, Vodafone, 3, Virgin Mobile, BT Mobile, GiffGaff, Tesco Mobile and Telecom Plus). Provides free, 24/7 text support for young people across the UK experiencing a mental health crisis. All texts are answered by trained volunteers, with support from experienced clinical supervisors. Young Minds Website This is a great website that a child or young person can access with excellent resources. Parents can also access it for ways to help support their children. The Emotional Wellbeing and Mental Health Service (EWMHS) Provides advice and support to children, young people and families who are in need of support with their emotional wellbeing or mental health difficulties. Can I talk to other kids with Long Covid? Yes. Lots of children have told our team that they enjoy the free online Zoom HangOut sessions we offer, and they like chatting with the friends they make in ChatBox. ChatBox is an online space for kids living with Long Covid. Kids between the ages of 8-17 years can chat online, be kids, and support each other. There is a different space for each age group to connect with other kids who are in the same age group and who maybe going through a similar experience. It is a great way to make new friends who ‘get it’. If you are under 16 you will need to ask your parent or caregiver to complete the registration form, if you are over 16 you can complete this for yourself. ChatBox Online Forum Online chat forum for kids living with Long Covid. Separate channels for ages; • Age 8-11 years • Age 12-14 years • Age 15+ years • Parents & caregivers ChatBox members can choose to engage in specific topics and discussions that interest them. Connect with other kids who are the same age, or share similar interests and form supportive friendships. ChatBox can be used in between LCK Connected sessions to nurture relationships and gain support. Find out more LCK Connected LCK Connected offers weekly Zoom HangOuts led by our experienced volunteer team and provides a welcoming session for children from ages 6-17 years, parents and caregivers. Members can actively participate and chat with cameras on, others pop in to say ‘Hello’ at the start and then switch their camera off, hang out, chill and listen. Members often choose to continue discussions, friendships and peer-to-peer support via ChatBox Find out more What if nobody believes me ? Long Covid is new, and everybody is learning. Try to talk to your family or trusted adult about how you are feeling. Try to explain how your symptoms affect you. You may find it helpful to show them the information on this website to help them understand more about Long Covid. Consider reaching out to a trusted adult from your extended family (e.g Aunt, Grandparent) or somebody at school. They might be able to help speak to your family for you or with you. Depending on your age you have different rights to seek support without consent and whether or not this support has to be kept private or confidential. You could phone your GP to seek support and they will assess whether you have the capacity to do this. Can I consent to my own treatment? People aged 16 or over are entitled to consent to their own treatment. This can only be overruled in exceptional circumstances. If you are under the age of 16 you can consent to your own treatment if you’re believed to have enough intelligence, and competence to fully understand what’s involved in your treatment. This is known as being Gillick competent. Can I refuse to have treatment? If you refuse treatment, and that refusal could cause you serious harm, your decision can be overruled by the Court of Protection. This is the legal body that oversees the operation of the Mental Capacity Act (2005). If you have refused treatment your parents may consent for you, but it’s usually thought best to go through the courts in this situation. Do I have a right to keep my treatment confidential? Yes. Article 16 of the UN Convention states that children have a right to privacy. This means that you are entitled to respect for privacy and confidentiality, for example, in getting advice and counselling on health matters, depending on your age and understanding. Breaking confidentiality is done only when it is in the best interest of you or the public, required by law or if you give your consent. LCK Conncted - FAQS Testimonials "LCK connected is a online chat forum for parents, caregivers, children and young people living with Long Covid. "

Γκαλερί συμπτωμάτων Long Covid Kids Άρθρα και πληροφορίες για το Covid & Long Covid από όλο τον κόσμο. Η έρευνα της 23ης Δεκεμβρίου πρέπει να γίνει επειγόντως για να καλυφθούν τα πολλά κενά σε αυτήν τη νέα «κατευθυντήρια γραμμή» 21 Δεκ Ασυμπτωματική μετάδοση του covid-19 22 Δεκεμβρίου Η ανοσία COVID διαρκεί τουλάχιστον οκτώ μήνες, αποκαλύπτουν νέα δεδομένα Οι οδηγίες Long Covid της 18ης Δεκεμβρίου πρέπει να αντικατοπτρίζουν τη ζωντανή εμπειρία 18 Δεκεμβρίου 2020 Οδηγίες της NICE για το Long Covid 18 Δεκεμβρίου Έκκληση για πανευρωπαϊκή δέσμευση για ταχεία και διαρκή μείωση των λοιμώξεων του SARS-CoV-2 15 Δεκεμβρίου Κοινοτική Εργασία και Σχολικός Εξαερισμός-CDC 15 Δεκεμβρίου Dec Neuroimaging εκδηλώσεις σε παιδιά με λοίμωξη SARS-CoV-2: μια πολυεθνική, πολυκεντρική συνεργατική μελέτη Τα πρόστιμα απουσίας της 11ης Δεκεμβρίου μειώθηκαν κατά 90% Αυξημένος βιοδείκτης 8ης Δεκεμβρίου που σχετίζεται με βλάβη αγγείων αίματος σε όλα τα παιδιά με SARS-CoV-2 Ανεξάρτητα από τη σοβαρότητα της νόσου 7 Δεκεμβρίου Αντιμετωπίζοντας την πρόκληση του μεγάλου COVID Οι γιατροί στις 3 Δεκεμβρίου προειδοποιούν ότι τα παιδιά που έχουν μολυνθεί με το COVID-19 ενδέχεται να διατρέχουν κίνδυνο καρδιακής ανεπάρκειας και βλάβης Οδηγίες εξαερισμού και κλιματισμού στις 3 Δεκεμβρίου HSE κατά τη διάρκεια της πανδημίας 2 Δεκεμβρίου Long Covid - Οι γιατροί πρέπει να αξιολογήσουν και να ερευνήσουν τους ασθενείς σωστά Εντοπίστηκε βλάβη στους πνεύμονες της 1ης Δεκεμβρίου 29 Νοεμβρίου Τα παιδιά δεν είναι εντάξει: Μια προκαταρκτική έκθεση για το σύνδρομο μετά το COVID σε φοιτητές πανεπιστημίου 24 Νοεμβρίου Παιδιατρικό Φλεγμονώδες Σύνδρομο Σύνδρομο 20 Νοεμβρίου μετά το Covid - Τι μπορούν να περιμένουν οι ασθενείς από το γιατρό τους Η έκθεση περίπτωσης της 17ης Νοεμβρίου και η συστηματική ανασκόπηση υποδηλώνουν ότι τα παιδιά μπορεί να παρουσιάσουν παρόμοιες μακροπρόθεσμες επιδράσεις με τους ενήλικες μετά από κλινικό COVID 17 Νοεμβρίου Long covid: Βλάβη σε πολλαπλά όργανα παρουσιάζεται σε νεαρούς ασθενείς χαμηλού κινδύνου 13 Νοεμβρίου Covid-19: πολιτικοποίηση, «διαφθορά» και καταστολή της επιστήμης Το προσχέδιο καθοδήγησης της 10ης Νοεμβρίου της NICE εξετάζει τη συνεχιζόμενη συζήτηση για τα καλύτερα ... 3η Νοη Μονοπυρήνωση, ο ιός Epstein Barr και θειαμίνη 15 Οκτωβρίου Αντι-SARS-Cov-2 IgA απόκριση στα δάκρυα των ασθενών με COVID-19 16 Οκτωβρίου Πολλαρχικής Αδυναμίας σε άτομα με χαμηλή βαθμολογία 4η Σεπ Πολυσυστήματος φλεγμονώδες σύνδρομο στα παιδιά: Μια συστηματική ανασκόπηση 17 Αυγούστου COVID-19 και σύνδρομο φλεγμονής πολλαπλών συστημάτων σε παιδιά και εφήβους 1η Ιουλίου Πιθανοί κίνδυνοι μόλυνσης από SARS Covid 2 στην αναπαραγωγική υγεία 17 Ιουνίου COVID-19 βρέθηκε να προκαλεί διαβήτη σε υγιείς ανθρώπους 22 Μαΐου Παθοφυσιολογία του SARS-CoV-2: 15 Μαΐου Φλεγμονώδες σύνδρομο πολλαπλών συστημάτων σε παιδιά και εφήβους που σχετίζονται προσωρινά με το COVID19

Γκαλερί συμπτωμάτων Long Covid Kids Donate today to help us support children to thrive and look forward to a positive future. My Donation I am donating a single payment of enter amount: £ You're about to do something amazing. Increase the impact now If you are a UK taxpayer you can boost your donation by 25p of Gift Aid for every £1 you donate. Gift Aid is reclaimed by Long Covid Kids from the tax you pay for the current tax year. Your address is needed to identify you as a current UK taxpayer. Tick if you are claiming Gift Aid? I am a UK taxpayer and I would like to Gift Aid my donation to Long Covid Kids and any donations I make in the future to Long Covid Kids or have made in the last 4 years. I understand that if I pay less income/capital gains tax than the amount of Gift Aid claimed on all my donations in the tax year in which they are received, it is my responsibility to pay any difference and that I must notify the charity of any changes to my tax status, including changes to my name or address. By completing this section I confirm that this donation is a) my own money and b) is not made as part of a sweepstake, raffle or lottery and I am not receiving anything in return for it. Full Address Postcode You can only claim Gift Aid if you pay tax in the United Kingdom. Donate Thank you for your donation! Find out how we will use your donation? Awareness Raising awareness and early intervention can improve health and learning outcomes for children and young people. ​ We aim to provide families and healthcare professionals and schools with appropriate educational materials. We want to reduce stigma, support and educate. ​ We want to provide the facts clearly in multiple languages so families can make informed decisions about their health. Support To continue to improve the support services we offer, we hope to engage; Youth workers Play Therapists Occupational Therapists Counsellors ​ We run regional meet-ups in local communities to enable families to connect, and kids can meet each other in person. We would like to offer training and resources. Research Long Covid Kids are keen to support coproduced paediatric biomedical research. We understand how important it is that of children and young people inform research. We hope to improve opportunities for our members, and our youth advisory panel and fund research on the long-term impact of Long Covid on children and young people and their families at home and in education. Action The Long Covid Kids team won't give up on our campaigning for improved indoor air quality. We would be thrilled to be able to support schools to achieve this to reduce future risk of transmission and disease. ​ We would like to provide educational materials and information packs to help communities reduce their risk. Other ways to donate and fundraise Send a cheque Payable to; Long Covid Kids & Friends Our registered address is; Fletcher & Partners Crown Chambers Bridge Street SALISBURY SP1 2LZ BACS Long Covid Kids and Friends ​ CAF Cash Account: 00034828 Sort Code: 40-52-40 IBAN: GB28CAFB40524000034828 Start a fundraiser Find creative, set your own challenge, and support Long covid Kids. Find us on Go Fund Me to start your fundraiser Find out more We have found an easy fundraising idea, that won't cost you anything extra. LCK is a volunteer-led, non-profit organisation, which means that every penny really counts. Easy Fundraising has partnerships with over 7,000 brands who will donate part of what you spend on their website to a cause of your choice. It won't cost you any extra. The cost is covered by the brand. Remember to allow the reminder pop-up that will let you know when you are on a site that makes a donation! ​ 7formation, a construction company based in Corby is fundraising for Long Covid Kids this year In July ’21, one of our shareholder's daughter Hannah sadly suffered severely when she contracted Covid. Hannah was incredibly poorly and in October 21 she became much worse, suffering many debilitating symptoms, but among the worst of them was paralysis from the waist down. ​ Pre-Covid, Hannah was a bright, happy, funny, dance-loving, kind and caring 13yr old, that was living a fulfilled life, with every opportunity ahead of her. She loved the school where she thrived and was incredibly happy and settled. Now at 14, she struggles to get through the day, with the many debilitating symptoms and constant pain that she now lives with. Hannah has been affected both physically and neurologically / cognitively. Despite all of this, she is a total inspiration and an amazing and resilient young lady, never complains and just gets on with a smile on her face. She never lets on to others the true suffering that she endures daily. ​ Please help us reach our target and donate today. DONATE Thank you for your support every little helps

Γκαλερί συμπτωμάτων Long Covid Kids Download LCK Awareness Pack Sunday newsletter Το Long Covid εξακολουθεί να ερευνάται και να γίνεται κατανοητό. Η μελέτη Long Covid Kids. Ενώ περιμένουμε να αναπτυχθεί η έρευνα, υπάρχουν πολλά που μπορούμε να μάθουμε από άλλες χρόνιες φλεγμονώδεις καταστάσεις. Το Long Covid είναι μια πολυ-συστημική συνθήκη που απαιτεί μια ολιστική προσέγγιση. Ελπίζουμε ότι όλες οι έρευνες θα ωφελήσουν τα παιδιά σε όλες τις κοινότητες με χρόνιες μακροχρόνιες καταστάσεις, πολλές από τις οποίες κάνουν εκστρατεία εδώ και χρόνια. Αυτή η σελίδα έχει συνδέσμους προς ιστότοπους που έχουμε βρει χρήσιμους. POTS UK Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition. Button SCOTTISH INTERCOLLEGIATE GUIDELINES NETWORK A booklet for people who have signs and symptoms that continue or develop after acute COVID-19 Button ME ASSOCIATION Provides information, support and practical advice for people, families and carers affected by M.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS) Button LONG COVID PHYSIO Founded November 2020 by Physiotherapists living with Long COVID. Resources and advice on exercise and pacing. Button LONG COVID SUPPORT Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and research into treatments since May 2020 Button MASTCELL ACTION MCAS is part of a spectrum of mast cell disorders involving proliferation and/or excessive sensitivity of mast cells. MCAS causes a wide range of symptoms in any of the different systems of the body, frequently affecting several systems at the same time. Button ABSENT The Sense of Smell Project (SoSP) is a collaboration between patients with smell disorders and scientists. Button LONG COVID SOS Recognition - Research Rehab Button BRITISH HEART FOUNDATION The website features a coronavirus support hub with lots of helpful information. It also includes what Covid-19 means for you if you have a heart or circulatory condition Button DEPARTMENT OF WORK & PENSIONS Medical guidance for DLA decision makers (child cases): staff guide Button PANS/PANDAS PANS is a neuropsychiatric condition triggered by a misdirected immune response resulting in inflammation of a child's brain. Button NATURE DOC Integrated functional medicine supporting the body from the inside out Button ZERO COVID ALLIANCE Zero Covid Alliance focuses on gathering all the COVID community efforts across the globe, create new ones by providing accessible information based on the circumstances in the area, and empower the general public in making informed, health-conscious decisions. Button DYSAUTONOMIA Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System Button NHS LONG COVID Advice on managing lingering symptoms of Coronavirus from the NHS Long Covid Library and Knowledge Services Button NSPCC Coronavirus (COVID-19) advice and support for parents and carers Whether you're working from home with your kids for the first time or supporting children with anxiety due to coronavirus, we've got tips and Button

Γκαλερί συμπτωμάτων Long Covid Kids

Impact Our Impact We all have a responsibility and an opportunity to improve the health and learning outcomes of children with Long Covid and to protect all children from SARS-CoV-2 infection and reinfection. ​ Long Covid is a preventable condition; there is no time to lose to reduce the transmission of SARS-CoV-2 and reduce the incidence of Long Covid. Community action is vital to achieving this goal. ​ The resilience of the children and young people we support inspires and motivates our team daily. Through collaboration, partnerships and generous donations of time, skills and funds, the Long Covid Kids team have achieved more than we could have imagined in our first year as a charity. ​ First Annual Review Learn more about our impact in our first annual review. Donate to support our work

Γκαλερί συμπτωμάτων Long Covid Kids All Videos Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 02:58 Our CEO Sammie McFarland BBC News from the Covid Inquiry, 6th December 2023 Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 00:34 #ItCouldHappenToYou | 6th December 2023 | Long Covid Kids #ItCouldHappenToYou Sign our petition urging the government to act now and provide the essential financial investment required for the necessary and significant improvements needed in understanding and addressing this complex health condition. https://bit.ly/46Hjjn1 #ItCouldHappenToYou Find out more about our collaborative campaign with Long Covid Support, Long Covid SOS and Long Covid Physio. https://www.longcovidgroups.org/ #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 05:02 Our KC Anthony Metzer Questions Prof James Rubin 18th October 2023 What impact would the absence of public messaging on Long Covid have on protective behaviours in the community to manage the risk of Long Covid? #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 04:36 Our KC questions Peter Horby | 18th OCTOBER 2023 | Long Covid Kids #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 06:58 Long Covid Group KC questions Prof Kamlesh Khunti at the UK Covid Inquiry #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 05:43 Sammie McFarland talks to BBC Radio Solent about the COVID INQUIRY | 4th October 2023 Q - "What did you think of what you heard yesterday?" A - "Shocking, not surprising" Read our PR here: https://www.longcovidkids.org/post/covid-inquiry-position-statement-3rd-october-2023 #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 14:47 Opening Statement From The Long Covid Group | UK COVID INQUIRY | 3rd October 2023 | Long Covid Kids "Forgotten, unheard, disbelieved, isolated, unemployed, disabled, immobile. These are the words that characterise the life-altering and devastating experience that people with Long Covid have continued to suffer in the pandemic" Anthony Metzer KC on behalf of the Long Covid Groups. 3/10/2023 Long Covid Kids Long Covid SOS Long Covid Support. If Long Covid was foreseeable, why was it not foreseen? #CovidInquiry #LongCovidKids #LongCovid #CleanTheAirWeShare #CleanAir ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 04:18 UK Covid 19 Enquiry Opening Statement | 27.09.23 #LongCovidKids #MakeSchoolsSafe ⭐Our Purpose⭐ We believe all children should be able to thrive and look forward to a positive future. That is why we represent and support children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them. ⭐Our Vision⭐ To achieve recognition, support and recovery for Long Covid and related illnesses in children and young people ⭐Our Mission⭐ • Awareness To raise awareness of the symptoms of Long Covid and related illnesses in children and young people to increase understanding, aid early diagnosis and improve response and intervention. • Support To connect and support children and young people living with Long Covid and the parents and caregivers that look after them. • Research To fund and participate in global research to investigate health implications, improve the lived experience and enable recovery. • Action To represent children and young people living with Long Covid in expert forums, research panels, health organisations and parliamentary groups. Find us on; ⭐Facebook - Long Covid Kids - https://www.facebook.com/groups/longcovidkids ⭐Instagram - https://www.instagram.com/long_covid_kids ⭐Twitter - https://twitter.com/LongCovidKids Donate to support our work. https://www.longcovidkids.org/donate Please help us in any way you can. ⭐Share our story. ⭐Follow our social media, share and comment. ⭐If you are a parent or young prison who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group We welcome parents from all countries to join us. Awareness. Support. Research. Action. Press enquiries: info@longcovidkids.org Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 03:53 UK Covid Inquiry resumes as government actions during pandemic under scrutiny Lockdowns, travel restrictions and social distancing. The covid years generated a whole new lexicon of terms - familiar to us all - that were born out of Government measures to limit the spread of the disease. (Subscribe: https://bit.ly/C4_News_Subscribe) An examination of how ministers and medical experts came up with the regulations and guidance from the very start of the pandemic is the subject of the second stage of the UK's Covid 19 Inquiry which opened today. Previously unseen evidence is expected to be taken into account including excerpts from the Chief Scientific Officer Patrick Vallance's diaries. ----------------------- Follow us: Facebook - https://www.facebook.com/Channel4News/ Twitter - https://twitter.com/Channel4News TikTok - https://www.tiktok.com/@c4news Instagram - https://www.instagram.com/channel4news/ Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 19:11 Dr Binita Kane on Long Covid in Children Physician Binita Kane, a lung specialist in Manchester, England, and an Honorary Senior Lecturer at the University of Manchester’s School of Biological Sciences, has been outspoken on the subject of long Covid in children. Her passion about the issue has been fueled by her own daughter’s struggle with prolonged symptoms after an acute coronavirus infection. In an article in The Conversation called “Supporting a child with long COVID – tips from parents of children living with the condition,” Dr Kane and two co-authors write this: “The latest figures from the UK’s Office for National Statistics show an estimated 69,000 children are living with long COVID, 41,000 of whom have had symptoms for at least a year…The most common symptoms of long COVID in children are fatigue and headaches, but young people can also have a range of other symptoms including chest pain, persistent cough, dizziness, nausea, abdominal pain, anxiety and low mood.” Dr Kane is currently a voluntary advisor to the group Long COVID Kids. We recently spoke about her own family’s experiences, what she sees happening with other families, and related issues: Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 04:32 ITV Meridian TV Interview with Dr Binita Kane Dr Binita Kane discusses the NHS provision for children with Long Covid, her daughter's treatment in Germany and what the government must do. Broadcast 29th March 2023 Αναπαραγωγή βίντεο Αναπαραγωγή βίντεο 05:35 ITV Meridian Long Covid in Children - Report 5 The fifth in a special series of reports from ITV News Meridian - speaking to some of the thousands of children affected by long Covid and the impact it's had on their families. Φόρτωση περισσότερων

Γκαλερί συμπτωμάτων Long Covid Kids On top of the many issues schools have faced during the pandemic, increasing numbers of children with Long Covid will mean significant new challenges for school staff. Children, young people and their families look to schools for support to manage the wide-ranging impacts on their lives and to help them access their education. They need school staff to believe them, and provide signposting and may need flexible and hybrid learning options that support their wellbeing. Long Covid Kids provide resources and information to support educational staff. Support For Schools This leaflet is free to download and provides bite size essential information for schools . ​ What is Long Covid? The size of the problem What staff need to know What children want their teacher to know What parents want their teacher to know Health effects of indoor air on children and young people Air cleaning solution Resources and support ​ Long Covid Kids Twinkl Resources So what can parents and carers do about Long Covid, and how can they support their child through it? This blog from Twinkl looks at options The effect of Long Covid on children Clean Air Recognising the importance of in-person learning, Long Covid Kids began campaigning for improved indoor air quality for schools in the autumn term of 2020. CO2 Monitors In Schools Corsi Rosenthal Thomas Box Blogs, Publications & Podcasts British Journal of Child Health - Supporting children and young people with long COVID in the classroom ​ ​ British Journal of Child Health - Supporting Children Living with Long Covid to Return to School in September British Journal of Child Health - Summer Holidays with Long Covid Kids WHO - Life as a young person with long COVID: “You go through so many phases of up and down, it’s like being on a rollercoaster forever” SecEd - How can we support pupils who have Long Covid? SecEd - Exhausting, painful, lonely: The impact of Long Covid on children SecEd - Supporting students with Long Covid Headteacher - How can we support pupils who have Long Covid? Edpsy UK - I wish I didn’t have to: becoming the mother of a child with long covid and an EP working with Long Covid Kids. LCK - Long Covid Kids UK Child Specific COVID-19 Infection Analysis ​ ​ ​ Padlets ​ LCK provide five padlets with useful links to articles, resources and information for: ​ Schools and Education Professionals Children Young People Families Health and Social Care Professionals ​ ​